That moment you realize no one believes you or your disease — October 1, 2017

That moment you realize no one believes you or your disease

I came to the realization that there are doctors, more specifically those who don’t fully understand what endometriosis is, and therefore think I’m faking my pain. It all started last Saturday at Kettering. I was in the ER for excruciating back and pelvic pain. I get back to a room where I wasn’t given an IV or anything. After a few minutes a lovely young lady walks in. I see she has a notepad and is in scrubs. So basically she’s a student learning for this shift. She sat down and asked the usual questions : why are you here? where is your pain? what has caused this pain? can you explain in more detail what endometriosis is? have you had surgery in the past? Tell me more about your surgeries. And this goes on and on and on and on because so many nurses have never heard of the term endometriosis before they encountered me. After sitting the room for over an hour, I’ve asked for water because I’m getting quite parched, they ask me to do a pee test. Now if I hadn’t seen what I did when I walked in maybe I wouldn’t be second guessing the reasoning ┬ábehind it all. And when the nurse came back into the room and said my sample was fine they just wanted me to make sure there wasn’t anything in my system. After that it was like here’s an anti-nausea pill and a shot of morphine and you get to go home now.

Here’s why I’m complaining. When a doctor can’t “see” pain it can be very hard to diagnose. But I feel like a lot of the time when things get too hard or their priorities shift they’re just like this girl needs to go there is nothing we can do for her. So now we are back at square one. I have an OBGYN appointment tuesday. As you can tell its 3am. I’m in more pain than you can imagine and the pain in my lower back is starting to spasm.

Until we have a day where information about endometriosis comes out and there is a cure or even a way to detect it, this is how endometriosis will continually be treated.

Until Next Time

xoxo

Advertisements
Through the looking glass… — May 27, 2017

Through the looking glass…

Have you seen the movie Alice Through the Looking Glass? Ya, I haven’t either. LOL But what I can gather from the title of the film is that Alice is going back to Wonderland to help the Mad Hatter. “Through the Looking Glass”, to me, is portrayed as looking at things or people from your own eyes. Have you ever just looked at someone and caught them at a very raw and vulnerable moment? To me, that is a through the looking glass moment (Now I could be totally wrong on how I’m using this phrase so please feel free to correct me if I’m wrong). This very thing just happened before going to sleep. I was going back into the living room to write and forgot I left the surface in our bedroom. I was being really quiet and I went in our bedroom to retrieve the surface but I see Russell eyes close, fingers laced together, praying. I can’t tell you what he’s praying for because he wasn’t saying anything out loud. But what I can tell you is I know he prays for me. He prays for our marriage, for our friendship, for our life together, for us to continually be as happy as we can be. For a baby. I know he prays for me to have peace because he knows there are plenty of times when I want to cave and just cry. There are moments when I’ve told him I don’t know how much more I can take. But looking at him in that moment was all the strength I need to keep pushing forward. Seeing him sending out positive vibes into the universe and praying for us to have our miracle baby, makes my heart so full. Knowing that this man is asking, begging, pleading for this month to be different gives me hope. He gives me the drive I need to keep going because there are so many days when emotionally I am not okay. I can’t tell you enough how much having him by my side has put many difficult and unexpected moments into perspective. The times when I’d ask “why?” or “when is it going to be our time?” or ” am I worthy enough to be a mother?” or ” am I being punished for something I’ve done?”. These questions are hard for anyone to answer let alone your spouse. The fear. The doubt that creeps in. All the negative emotions and thoughts that creep in every now and then are why I need him by my side. Seeing him take the time out of his day, even just for a moment to pray for us…. there are no words to describe that sight and feeling.

Going through infertility changes a woman…I’ve said this a million times before and I’ll keep saying that infertility changes everything about you. Infertility changes the way a woman looks at another with children, it can change the dynamic of a relationship, it can ruin friendships. Infertility has so many dark moments that seeing moments like Russell praying brings light into a very dark room. If there is one thing infertility has done it has brought us closer together. I feel like Russell and I are stronger and more connected than ever. I am glad I had this through the looking glass moment of watching him pray.

Keep stopping by for more updates on whats to come on your journey towards Baby Y!

Until Next Time

xoxo

An open letter to my best friend — November 8, 2015

An open letter to my best friend

IMAG0589

Caitlyn

To say I’m proud of you would be an understatement. Your hard work, persistence, and never give up attitude landed you in the Top 15 of Miss Ohio USA. Watching you last night on stage was one of the highlights of my year. This journey hasn’t been easy for you ( but how boring would it have been if it was?!) but you pushed hard, made sacrifices, and knew that with God on your side you could do anything you set your mind to. Preparing for a pageant is more difficult than anyone can imagine. You worked harder than ever; working out, practicing, and even watching what you eat (btw I hope your enjoying a donut as you read this!) to make sure your body was in top shape, and you looked amazing!

Caitlyn, you are one of the kindest, sweetest souls I have ever met. You show me day in and day out what it means to let God show your way. Throughout this entire process you have known all along that God has a bigger plan for you than you can imagine. I can’t even begin to tell you how amazing that is. Watching you grow and become more confident in yourself has been such a joy.

I am so grateful to have you in my life. Thankful for all of our conversations. Thankful to have a pageant sister like you that goes to the end of the earth for her bestie, even if we do live 3.5 hours away from each other. I am in awe of your grace and how much your give of yourself. I am so thankful for the friendship we share and can’t wait to see where your path will lead you. ┬áThank you for being the role model, an inspiration, and more importantly for being a strong woman of God.

With love