There’s this group on Facebook called Endometriosis and Me. I stumbled across the website and noticed that the women there seem so connected. And not in the everyone is connected on Facebook way, but that much deeper connection, is the type of relationship these women are in. At the time of me looking for a group to join I needed a group like this. For the last year I’ve been pretty quiet. I only ask questions that are really concerning or to get medication advice from these women. I have never met any of these women but for some reason I feel like we are bonded and connected by this disease. This disease is awful and with doctors and big pharma it will continue to take on average 10 years before a woman is diagnosed with this disease.
And can we talk about these women? These women are some of the strongest women I’ve ever “met “in my life. They share their stories. They share when they’re having a tough day. They share when they can’t get out of the house and do something normal because when this disease grabs hold of your body it doesn’t let go. We make plans only to cancel them last minute because we don’t feel well or can’t seem to move out from our fetal position on the floor with the heating pad wrapped around our bellies. These women really, truly, understand what the saying ‘the little things matter’ means. Our little things are small victories like getting out of bed, showering, putting on real clothes, no leggings and a sweatshirt, real decent clothing. Our little things are getting through the day without feeling a stabbing pain at some point in your stomach, back, or pelvic area. For me my wins include putting makeup on on a day when I’m not working; cleaning the entire house without feeling like I’ve been hit by a train going 100 miles per hour. Small victories can get us throughout the day but not always.
There are some days when you’ve accomplished a few things but in your mind it’s not enough. That’s where having a person who supports you is so important. In the group, Endometriosis and Me I asked the girls to share their story of who their person is. A few girls said they are single and live alone so they don’t have a person. These women also mentioned how hard dating is with endometriosis, which I can’t even imagine since dating seems to be the worst thing to want to do right now, endo or not. But, Crystal’s story really got me emotional. She talked about her boyfriend and how much he has been able to get her through this. She said her journey has been especially hard. But he is there for her. He lays in bed with her and they do Netflix marathons, while snuggling and eating popcorn. She is going through the depo shot and I pray she doesn’t experience all the awful things I did. She mentioned how he rubs her feet, draws her relaxing baths, and goes to all of her appointments because he knows how bad her anxiety in doctor’s office settings are for her. There’s something that can happen along the journey of going through endometriosis. We as women start to think we aren’t pretty enough or good enough for our partners. Her story and testimony are why strong relationships exist. Her story is a true example of true love. When a woman is diagnosed with endo and their partner finds out there is a possibility they may never have children it’s scary. Don’t think for one second that I wasn’t telling Russell to never leave me. In fact, after my left ovary and tube were removed, during our engagement, I told him I would understand if he wanted to be with someone who didn’t have endometriosis, who could give him everything he wants in life. But he said he will always choose me and I am forever grateful for my husband and his decision to help me fight this. Every woman you talk to will have a different story on who their person is. But usually it’s the person who is there for them most and takes care of them. For me, my person is my husband because even though he’s sick right now he’s making sure I have enough pillows and blankets to keep me warm. He is my angel sent from heaven.
To all the girls out there who feel alone, like we all do at times, let’s connect! Leave a comment with your social media and we can be friends, even if it’s just the kind of friends to talk about who shitty endo is. And if you have a story to share of your person I’d love to hear about it! Connect with me on Facebook or Instagram or on here! And please remember your self worth and value are more than what this disease makes you think.
Until Next Time